Information about Kidney Disease
What is Chronic Kidney Disease (CKD)?
Chronic Kidney Disease (CKD) is when the kidneys do not work as well as they should. The word “chronic” means that the disease develops over a long time and will usually get worse as you get older. People may not feel symptoms with kidney disease until it is very severe. This is why it is important to know if you are at risk of CKD, and if so, to have a test at least once a year to check both your blood and urine for signs.
Am I at risk of CKD?
The top causes of kidney disease are diabetes and high blood pressure. We cannot cure CKD, but there are medications and lifestyle changes that can help to slow down the disease for many people. For example, keeping blood sugars under control (if you have diabetes), and having good blood pressure is especially important – it helps to protect the kidneys, but also to reduce the risk of developing heart and blood vessel disease (which we call cardiovascular disease).
It is important to stop smoking, as being a non-smoker is shown to lower the risk of CKD and heart disease. The other thing that reduces risk is eating a healthy diet and exercising regularly.
What are the risk factors of CKD?
Age: The risk of developing kidney disease and also requiring Renal Replacement Therapy (RRT) increases with age, with a peak in the 75-84 year age band with a median age of 64 years.
The burden of RRT service provision (in terms of numbers) falls mostly within the 45-74 year age band. The median age for the prevalent RRT population is 60 years.
Ethnicity: Crude incidence rates for RRT are higher amongst Black and Asian ethnic groups. Evidence for ethnic differences in CKD progression and outcomes is mixed. Evidence for poorer access to healthcare services in general for BME groups is reported.
Socio-economic status: Crude incidence rates for RRT are higher amongst patients who live in areas categorised as more deprived. Evidence from research demonstrates that those who are social deprived are more likely to develop CKD than their less disadvantaged counterparts.
Clinical risk factors: High blood pressure is both a leading cause of and complication of CKD. It increases the chance that kidney disease will get worse.
Diabetes is the leading cause of kidney failure, An estimated 40 per cent of people with both type 1 and type 2 diabetes will develop CKD during their lifetime.
Early-stage CKD is clearly a risk for developing more advanced disease as well as being a risk factor for AKI. Albuminuria is a risk factor for faster progression of CKD as well as renal failure and CVD.
Frailty is prevalent in patients with CKD and it is associated with an increased risk of adverse health outcomes.
Mental health disorders or more common among people living with kidney disease which has consequences for their ability to adhere to treatment plans.
Heart failure is a significant risk factor for kidney disease.
My GP has told me I have kidney disease.
If a GP sees that someone is at risk of CKD, they will check their blood (for signs of reduced kidney function) and urine (for signs of protein, which indicates kidney damage). People living with CKD can be managed by their GP alongside advice and support from the kidney specialists at hospital trusts.
A GP may recommend certain medications to protect the kidneys and heart. As mentioned above, they will offer advice to stop smoking, eat healthily and exercise.
Some people will need to see a kidney specialist to help manage their CKD. A GP can refer people to a hospital that provides specialist kidney care if needed.
I'm seeing a specialist Dr at the hospital for my kidney disease.
Your specialist nurse or doctor will be able to provide you with more information that relates to you and your health condition. It is important that you attend the hospital appointments so that the team can help you to manage your kidney problems. In some people with CKD, your team may talk to you about transplantation or dialysis, which are treatments for kidney failure.
Where can I learn more?
You can learn more about kidney disease and its management from our charity colleagues:
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- Kidney Care UK: https://www.kidneycareuk.
org/ - Kidney Research UK: https://www.
kidneyresearchuk.org/ - National Kidney Federation: https://www.kidney.
org.uk/
- Kidney Care UK: https://www.kidneycareuk.
Additional useful links:
About Kidney Disease:
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- NHS guide to Chronic Kidney Disease prevention
- What is Chronic Kidney Disease? (London Kidney Network)
Managing Kidney Disease:
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- Urine testing for checking kidney health (London Kidney Network)
- NHS guide to treatment for high blood pressure
- Controlling your blood pressure if you have diabetes (Diabetes UK)
- How to manage CKD when you’re sick (London Kidney Network)
Healthy Lifestyle Information:
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- Kidney-friendly cooking and eating information (Kidney Care UK)
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Kidney Beam provides a range of information and classes to support you to improve your physical and emotional well-being.Find out more on their website https://beamfeelgood.com/kidney%20disease
I'd like to meet other people who have kidney diease.
KPAs, or Kidney Patient Associations, support people with kidney disease and their loved ones at local kidney units. They are run by the National Kidney Federations.
You can find out your local KPAs through their websites, or through the NKF website https://www.kidney.
The KPAs in the London Network Group and their websites are:
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- Royal Free Hospital KPA – www.rfhkpa.org/
- Barts Renal Patient’s Association – Don’t have a website
- Royal London KPA – http://rlhkpa.org.uk/
- West London KPA – www.westlondonkpa.org
- Lister Area KPA – www.lakpa.org
- Guy’s & St Thomas’ KPA – www.gsttkpa.org
- St Helier & Surrey KPA – www.shskpa.org
- Kings KPA – https://www.kkpa.co.uk/
Resources
Urine testing for checking kidney health
What is chronic kidney disease?
What causes chronic kidney disease?
What are the treatments for chronic kidney disease?
What should I eat to help keep my kidneys healthy?
Healthy Portion Sizes
Salt Alternatives
African & Caribbean Eatwell Guide