Patient Involvement in the London Kidney Network

We know that patient involvement and engagement leads to better health outcomes, and input on what is needed to improve healthcare from a service user perspective is vital. 

We need patients and carers to work with us to plan, deliver and evaluate kidney care services across London and Surrey Heartlands. We need people who have experience of kidney disease to work with us to help develop research and quality improvement initiatives, service commissioning and health policy.  These help us achieve the aim of “Getting it Right First Time” [GIRFT].

Patients can also help to develop, adapt and support the national quality standards for the involvement of service users and carers.

The LKN puts patient involvement and partnership at the centre of our work, and we actively involve people with lived experience of kidney disease. You could be part of of work to plan and deliver patient pathway developments, create and review patient facing resources, or ensure patient views are central to the strategic outlook of the network. You might:

• Use your experiences to inform and influence our work
• Discover and explore a range of opportunities to get involved depending on your interests and expertise
• Join our PEG (Patient Experience Group) which offers monthly discussion groups on specific topics with LKN clinicians

We are committed to diversity and inclusion and will work with members of the PEG to explore communication channels to reach more people.

Anyone in London affected by kidney disease can join the PEG (Patient Experience Group). If you are newly diagnosed with CKD, going through the different stages of CKD, on dialysis or had a transplant, we want to hear your experiences. We also welcome carers and family members or people at risk of kidney disease so that we are capturing the breadth of kidney experience in London.

However big or small your input, it will be valuable and it will help shape our work.

Please complete this form https://forms.office.com/e/EHgfxrskUg and tell us a little about yourself, your interests and the experience you can bring.

If you’d like to find out more about being involved in kidney work outside the LKN, contact our colleagues at the Kidney Patient Involvement Network  https://kpin.org.uk/

Patient involvement in the LKN is a voluntary role. Don’t worry if you haven’t been involved in this sort of work before, the LKN team will help you to feel comfortable and able to contribute.

We will be happy to provide written recognition and acknowledgement of your contribution as a volunteer so that you have a record available for your personal use where this may be helpful to you.

We will stay in touch with you via:

• Regular newsletter with updates, opportunities for involvement and invite to our next monthly discussion meeting

If you have any other questions about volunteering please do contact us to discuss via email us at  lkn.londonkidneynetwork@nhs.net