Patient Involvement in the London Kidney Network

The LKN is committed to involving patients and public to influence the work we do.  We know that patient involvement and engagement leads to better health outcomes, and input on what is needed to improve healthcare from a service user perspective is vital. 

We need patient and carer’s voices and experiences to work with us to plan, deliver and evaluate kidney care services across London and Surrey Heartlands. We also need people who have experience of kidney disease to work with us to develop research and quality improvement initiative, service commissioning and health policy all of which help us in the aim to “Getting it Right First Time” [GIRFT]. 

Patients can also help to develop, adapt and support the national quality standards for the involvement of service users and carers. 

The LKN puts patient involvement and partnership at the centre of our work, and we actively involve people with lived experience of kidney disease. You can help plan and deliver patient pathway developments, create and review patient facing resources and ensure patient views are central to the strategic outlook of the network. You could:

• Use your experiences to inform and influence our work
• Discover and explore a range of opportunities to get involved depending on your interests and expertise
• Join our PEG (Patient Experience Group) which offers monthly discussion groups on specific topics with LKN clinicians

We are committed to diversity and inclusion and will work with members of the PEG to explore communication channels to reach more people.

Anyone in London affected by kidney disease can join the PEG (Patient Experience Group). If you are newly diagnosed with CKD, going through the different stages of CKD on dialysis or had a transplant, we want to hear your experiences. We also want to welcome carers and family members or people at risk of kidney disease so that we are capturing the breadth of kidney experiences in London.

However big or small your input, it will be valuable and it will help shape our work.

Please complete this form https://forms.office.com/e/EHgfxrskUg and tell us a little about yourself, your interests and the experience you can bring.

If you’d like to find out more about being involved in kidney work outside the LKN, contact our colleagues at the Kidney Patient Involvement Network  https://kpin.org.uk/

If you are new to this type of role, support and guidance will be provided by the LKN Patient Involvement Lead. 

Patient involvement in the LKN is a voluntary role.

We will be happy to provide formal written recognition and acknowledgement of your contribution as a volunteer so that you have a record available for your personal use where this may be helpful to you.

We will stay in touch with you via:

• Regular newsletter with updates, opportunities for involvement and invite to our next monthly discussion meeting

If you have any other questions about volunteering please do contact us to discuss via email us at  [email protected]