Leadership Forums

3Ps 

22 November 2024 

This event provided an opportunity to:  

✔️ Share progress on pilot projects and initiatives being undertaken by the London’s ICBs 

✔️ Discuss the NHSE renal transformation programme

✔️ Collaborate on strategies to manage patient pathways more effectively

It covered

1. Multi-morbidity model of care project in South-East London (SEL ICB) 

2. Weight Loss Clinic: K-Fit (NCL ICB) 

3. Healthy Communities, healthy lives: A collaborative approach to CKD (SWL ICB) 

4. Cardiac Renal Metabolic (CRM) hubs in Harrow (NWL ICB) 

5. Renal CKD Cardiometabolic Pilot (NEL ICB) 

Patient Partnership Engagement & Peer Support 

24 October 2024 

This event provided an opportunity to:  

✔️ Discuss patient participation, engagement, and peer support within the LKN and partner organisations

✔️ Learn about the importance of patient involvement in improving health outcomes and service delivery 

✔️ Hear from patients and peer support volunteers about the impact of lived experiences on healthcare improvements 

It covered

1. Why patient engagement is relevant to us all 
2. Making peer-support work in all London units   

Mutual Aid – Ensuring Continuity in Renal Transplantation Services 

26 September 2024 

This event provided an opportunity to:  

✔️ Discuss mutual aid and transplantation within the LKN 

✔️ Reflect on how mutual aid worked during the recent cyber attacks and how it can ensure equity of access for patients 

✔️ Share good news stories and build resilience in transplantation services 

It covered

1. What is Mutual Aid?   

2. What do patients think?   

3. The role of Mutual Aid in continuing transplantation during the recent cyber attack  

4. What next?

How do Networks work, and why is it relevant to me? 

3 June 2024

This event provided an opportunity to: 

✔️ Understand how Networks work

✔️ Think about the benefits of collaborative working

✔️  Consider where on the ‘ladder of engagment’ you are, and where you’d like to be

It covered

1. How to engage with networks
2. How to engage with the LKN
3. How to contribute to the development of LKN relationships

Beyond the Bloods: Common Symptoms in Kidney Disease and How to Manage Them

26 June 2024

This event provided an opportunity to: 

✔️ Learn about symptom prevalence

✔️ Hear practical ideas about how to manage them

✔️  Learn about the role of  three allied heatlh professionals in symptom management

It covered

1. Symptom Prevalence and Impact in renal disease- Lyndsey Abdulnassir, Physio
2. Breathing Practicality into Kidney-related Dyspnoea Management​- Lyndsey Abdulnassir, Physio
3. Cognitive Impairment in Kidney Care- Lisa Ancliffe, OT
4. Renal Resilience: Managing fatigue amongst people with kidney care needs- Laura Lew OT
5. Dietary Approaches to Symptom Management – Katie Durman, Dietitian

Kidney Supportive Care in London

23 April 2024

This event provided an opportunity to: 

✔️ Gain insight into the Supportive Care Workstream’s achievements to date 

✔️ Consider how to apply their approach in your locality/speciality

✔️  Understand why the e-module is relevant to you

It covered

1. Overview of the LKN Supportive Care Work in 2023-24 – Dr Katie Vinen
2. Supportive Care Audit; Collecting and reporting a novel data set – Dr Heather Brown
3. Supportive Care and ACP (advanced Care Planning) e-module for staff – Sarah Mackie

Working with patients who have a learning disability 

26 February 2024

This event provided an opportunity to: 

✔️ Define what a learning disability is

✔️ Consider what the population is

✔️  Consider how kidney services can better support people with learning disabilities 

✔️ How case examples of good practice

It covered

1. Understanding People with Learning Disabilities and Addressing Health Inequalities 
2. Navigating Challenges: Addressing Specific Concerns in Caring for Patients with Learning Disabilities and Kidney Disease
3. Enhancing Care through Reasonable Adjustments: Strategies for Supporting People with Learning Disabilities

Clinical Information Group

27 November 2023

This event provided an opportunity to: 

✔️ Learn about the UK Renal registry’s plans, including the daily date feed

✔️ Hear how to access and use the RSTP data dashboard

It covered

1. Updates from the UK Renal Registry (UKRR), including UKRDC (Jame Metcalf and Joel Collins)
2.  RSTP Dashboard (Yogi Mistry)

Patient Partnership and Engagement (PPE) in the LKN

23 October 2023

This event provided an opportunity to: 

✔️ Learn how the LKN has included patient represenation in our work so far

✔️ Hear from a Patient Rep

✔️  Hear about furture plans for PPE, including peer support

It covered

1. Examples of LKN patient involvement
2. Feedback and discussion from Health Care Professionals and Kidney Patients about how PPe makes a difference
3. How  peer support is already making a difference

Learning with the LKN Health Equities Expert Advisory Group

25 September 2023

This event provided an opportunity to: 

✔️ Hear from paients how the cost of living crisis is affecting them

✔️ Learn what the LKN Health Equity group is doing to try to reduce inequalities

✔️  Hear from services outside London about how they’ve addressed inequalities

It covered

1. The realities of living with a long term condition during a cost of living crisis
2. Patient representatives, social care, voluntary sector, Health Professionals and NHS Organisations discussed real life examples 
3. Experiences of kidney health inequalities and service development to help in London and the North-East

System Solutions for CKD – Improving outcomes across England

24 July 2023

This event provided an opportunity to: 

✔️ Hear from Networks across the UK how they’re approaching Early Identification and Management of CKD

✔️ Learn about search tool options for Primary Care

✔️ Hear how Kidney Failure Risk Equation (KFRE) is being used in the North West 

✔️ Hear about examples of CKD education

It covered

1. Early Identification, Coding & Optimising Care and supporting implementation across London: Challenges & Lessons Learnt- 
2. CKD Identification: ‘Clinical Digital Resources Collaborative’ Searches in the North East & North Cumbria
3. KFRE: Early lessons on routine reporting in the North West
4. CKD Education, Interface & Engagement in the Midlands

Challenges and Opportunities for Young Adult Kidney Care

26 June 2023

This event provided an opportunity to: 

✔️ Share examples of good practice from across London

✔️ Learn what the implication to renal service of the NCEPOD Transition from Child to Adult Heatlhcare report are 

✔️  Discuss how we might work together to improve Young Adult services 

It covered

1. Implementation of a Young Adult kidney care pathway
2.  Service Development at Barts- Dr Andi Cove-Smith
3. Why are Young Adults needs different and what should we be focusing on?- Dr Joyce Popoola

Focus on Kidney Transplantation

22 May 2023

This event provided an opportunity to: 

✔️ Learn how services outside London have approached improving tranplant access by reducing service access barriers 

It covered

1. Health Inequalities and Access to Kidney Transplantation- Dr Adnan Sharif
2. Inequalities and inequities through the entire patient pathway 
3. Options for reducing inequalities
4. Insights and learning from Birmingham

Focus on Supportive Care

24 April 2023

This event provided an opportunity to: 

✔️ Consider how innovation in fraility and supportive care in Leeds can be implemented in London

✔️ Look beyond the medical options in fraility management to integrate rehabilitiation

✔️ Share work currently happening in London in Supportive Care

It covered

1. Integrating Supportive Care in London- Dr Heather Brown and Dr Katie Vinen

    

2. Value of Comprehensive Geriatric Assessment in AKCC to assess and Inform treatment Choices in Frail AKCC Patients- Dr Andrew Mooney

    

3. Rehabilitation for people living with frailty and CKD- Dr Hannah Young

Universal Care Plan (UCP)

27 March 2023

This event provided an opportunity to: 

✔️ Learn about the UCP and it’s development from Co-ordinate My Care

✔️ Hear how the Supportive Care Workstream are intending to include UCP as an Avanced Care Planning tool

It covered

1. Overview of UCP
2. System Integration - Lucy Coller, Nick Tigere UCP NHS South West London ICB and Katherine Buxton – UCP, Consultant Palliative Care Imperial College Healthcare NHS Trust
3. London Kidney Network (LKN) plans for UCP , Heather Brown – LKN SC chair

Home therapies – Peritoneal Dialysis

27 February 2023

This event provided an opportunity to: 

✔️ Hear the LKN’s reponse to National Home Therapies reimbursement guidelines

✔️ Learn how Nurses are being included in the Workstream’s priority plans

✔️ Learn why improving access to PD access services is a priority for the Workstream

 It covered

1. Reimbursement of utility costs for patients dialysing at home, Richard Corbett – LKN PD Worsktream Chair
2. Improving access to Peritoneal Dialysis, Bhrigu Sood – LKN PD Access Lead
3. Multidisciplinary engagement in the home therapies, Katie Durman – LKN MDT Lead, and Babakang Shakoane PD Community senior sister KCH

Vascular Access

23 January 2023

This event provided an opportunity to: 

✔️ Show-case the work of the VA Workstream

✔️ Share good practice examples from across London

✔️  Learn how a more granular VA dataset could be helpful 

It covered

1. LKN VA data pack- Peter Wilson – LKN BI Manager
2. Implementation of VA pathway at Imperial College Healthcare NHS Trust- Natasha Shenton Deputy General Manager Imperial College Healthcare NHS Trust
3. Dialysis Access – Barts EPR based pathway pilot- Ben Lindsey, LKN VA Chair