Young Adults

What is the purpose of this workstream?

The Young Adult Group works to address the unique needs and challenges faced by young adults with kidney disease. The team focus is to improve the transition of young adults with kidney disease from paediatric to adult care. It aims to streamline the transition while offering the best of care.  This includes addressing key areas of concern, such as medication management, psychosocial support, and training in providing developmentally appropriate care for all healthcare professionals. By providing a seamless and coordinated transition process, the YA team aims to help young adults with kidney disease achieve better health outcomes, improve their quality of life, and successfully transition into adult care.

‘Young adults with kidney disease face unique challenges when accessing healthcare, and while there are some examples of excellent practice, for too long this area has not been given the priority it deserves. We hope that our group’s work will help improve outcomes, and ensure that every young adult with kidney disease in London has access to best practice developmentally appropriate care.’

Refik Gökmen

Nephrologist at GSTT

Young Adult Care in London

Background info about the problem we are trying to solve.

Aims and objectives of the group:

Aims

    • The London Kidney Network Young Adult team aim to improve the holistic care of Young Adults (16-25 year olds) with kidney disease across London. 

Objectives
 

    • Ensure that every young adult with kidney disease in London has access to a dedicated multidisciplinary Young Adult clinic.
    • Establish a system of routine data collection for transition care and patient experience.
    • Ensure all health care professionals who have contact with young adults are appropriately skilled to provide best-practice care.
    • Enable young adults with kidney disease to have psychological support as part of their kidney care.
    • Ensure that young people are put at the centre of their own care
    • Work towards reducing health inequalities among young adults with kidney disease in London

Workstream Members

Refik Gökmen

Nephrologist – GSTT 

Caroline Booth

Paediatric Nephrologist – GSTT

Andrea Cove-Smith

Nephrologist – Barts Health NHS Trust

Sapna Shah

Nephrologist – King’s College Hosptial NHS Foundation Trust

Priscilla Smith

Nephrologist – King’s College Hosptial NHS Foundation Trust

Fiona Harris

Nephrologist – Epsom & St Helier

Emma Salisbury

Nephrologist – Imperial College Healthcare NHS Trust 

Ruth Pepper

Nephrologist – Royal Free NHS Foundation Trust

Joyce Popoola

Nephrologist – St George’s University Hospitals NHS Foundation Trust

Stephen Marks

Nephrologist – GOSH

Daljit Hothi

Paediatric Nephrologist – GOSH

Anna Buckley

Paediatric Nephrologist – GOSH

Claire Gaymer

Nephrologist – GOSH

Michelle Allan

Renal Trainee – Barts Health NHS Trust

Aran Wheatley

Paediatric renal transition nurse – Evelina – GSTT

Paula Maloney

Renal Nurse – King’s College Hosptial NHS Foundation Trust

 

Katie Cunningham

Renal Nurse – GSTT

Sarah Smail

Unit Manager – King’s College Hosptial NHS Foundation Trust

Phillip Alexander

Renal Psychotherapist – King’s College Hosptial NHS Foundation Trust

Shoshana Gelber

Young adult worker – Royal Free NHS Foundation Trust

Suhaylah Bauhadoor

Young adult worker – St George’s University Hospitals NHS Foundation Trust

Lai Man

Patient representative

Mariza Procopio

LKN Project Manager

Published Guidelines

Young Adult pathway – Download

Published Reports

Trainee Experience of Young Adult renal training – Download

Coming soon:

    • Young Adult renal care experience & feedback
    • Trainee in-person day training

Other Resources